It’s been one week since the diagnosis. Today definitely ended on a happier note, much better than last Wednesday.
Our little girl completed the first round of chemo and is currently sleeping quietly on her Olaf pillow pet. She had a busy day today. She was cleared to leave her room after being confined for the last few days due to a fever and a cold. But Daddy got her dressed in her Frozen gear and they were off to wander the hospital halls. She was so happy to be out and about. She was her usual playful self, and in a great mood this evening. I even got less of the mute game and more hugs. 🙂
That first round of chemo went faster than I thought. She’s now in a 2-3 week recovery period to rest up and get her blood cell count up. Providing everything goes well and she avoids any infections, illnesses, or colds that would sideline her, she proceeds to the next round of chemo. A PET scan will be done in June to monitor the progress.
It’s a nice break from the stress, the procedures and the chemo for now. Feeling like we can breathe a little. It is however, becoming a bit of a challenge with juggling the boys and getting them back to their bedtime routines. Hopefully with this recovery period we can get into a better cadence for everyone.
Her appetite comes and goes, but she definitely eats when she wants to. She’s enjoying playing with all her new toys. And her phobia of medical professionals is slowly starting to improve. We did notice she leans towards the male nurses and is a lot more cooperative with them.
Many have asked about visiting, and we welcome you. But we’ll probably hold off until the beginning of next week and the number of visitors per day, to protect her immune system. If you are sick, we respectfully ask that you come when you are feeling better. If you’ve been around anyone with a cold, we ask that you wear an isolation gown during your visit. Thanks for your understanding.
Her army continues to lift us all up. No words can ever express our thanks. The thoughtful texts, messages, posts, the gifts (we are up to our eyeballs in Frozen stuff LOL), and the visits mean so much.
We still ask for continued prayers as the road ahead is still a long and tough one. People always tell me, “It seems like you have a great support system,” and while we definitely do, we #cantstop #wontstop with the prayers, positive thoughts, and healing energy. Please don’t cross us off your intentions list anytime soon.
With every week, I hope the news gets better.
Thank you for continuing to follow us and support our journey.